What type of support is requested from an Advocacy Partner?
November 30, 2017 at 12:00 pm | Nicole
Our belief is that rare disease organizations have distilled the expert knowledge about specific conditions, and for that reason we want to connect diagnosed patients directly to their advocacy home. To accomplish this, official IDG partners will have a dedicated point of contact that IDG can share with patients. In addition, we will seek guidance from our partners for developing educational content for patients in the form of web tutorials, webinars and videos.
We also request our partners to actively promote our genomics program to their patients and relevant clinicians by encouraging them to sign-up to RARING TO GO. The extent of our outreach is a critical factor in keeping our genetic testing program free to all patients.