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FAQs
- Why should clinicians sign up?
- What is the Raring to Go registry?
- Who should register?
- What’s next after signing up?
- What is “deep phenotyping”?
- Who can register for Raring to Go?
- Is IDG only focused on rare or neurological diseases?
- What are IDG’s research interests?
- Who sees my information?
- What information will be shared with third parties?
- What’s the genome?
- Who has genetic variants?
- Can participating in research improve my treatment?
- Why will you need my blood sample?
- What can I expect after registering for Raring to Go?
- What are the benefits of genome sequencing?
- Why should advocacy organizations sign up?
- Can IDG help me implement a sequencing program?
- What type of support is requested from an Advocacy Partner?
- What kind of Advocacy Partner is In-Depth seeking?
- Can patients from our registry participate?
- Our patient community requires additional, non genetic, testing for a conclusive diagnosis; will this be included?
- Will IDG notify me when Phase 2|Clinical Intake begins?
- How will my information be used?
